Heart Warriors: A Family Faces Congenital Heart Disease


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Heart Warriors: A Family Faces Congenital Heart Disease

She is a woman committed and driven to holding onto hope and finding help for her son, Liam, who was born with congenital heart disease. But This is a review of the Advance Reader Copy For me, this was a tough read -- but let me quickly clarify that and tell you that any book, especially a memoir, that talks about the suffering of children is a tough read for me. But she doesn't start out as a "warrior.

She is a very tangible part of this book and her personality is painted on every page.

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Congenital Heart Defects Personal Stories

I think she'd be someone I'd like which made her story that much more interesting to me. But I think the larger value of this book is that will be a tool, a support system, even a guide for parents who are fighting the same battle as the author and her family.

Adult Congenital Heart Disease: What Patients and Families Should Know - Mayo Clinic

Not to mention the fact that it helps educate the public at large. The book states that congenital heart disease is "the single most common and lethal birth defect in the world in both the most advanced and the most underdeveloped nations. I did not. Do you know a family that is dealing with this issue? Well then you'd probably find a lot of value in this book as well. It is ultimately intended to help everyone. There were a few moments during this book that I felt a bit chastised because I would likely have been one of those people who says the wrong thing to a "heart parent" when they're trying to be supportive.

Adams mentions these moments in her book.


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But she also discusses her own personal growth and development, and that process was an appreciated addition to the read. Hopefully we all learn that, for the most part, people want to help. Sometimes we just don't have the whole picture. Besides the fact that this book can be a valuable asset to anyone close to someone with congenital heart disease, the best part of the book was Liam.

His resilience and overall attitude is an inspiration. Jul 24, Andrew rated it really liked it Shelves: reviewed , kindle. It is easy for me to relate to Amanda Adams' story. I was born with a congenital heart defect, and so was my son. I have been the child old enough to understand the idea of dying during surgery, and I have been the father who says goodbye to his son and walks to the waiting room. Anyone whose world has been changed by a congenital heart defect and those who are interested in our plight will get a lot of out this book.

The first half of the book is primarily Adams' story.

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Her son was misdiagnose It is easy for me to relate to Amanda Adams' story. Her son was misdiagnosed by a midwife during an ultrasound, and things exploded from there. She describes the struggles and obstacles but also how she was able to learn to cope and make the most of the changing situation. Her desire to fight for her son's life and not abort him was admirable. The second half is a mixture of her story and advice.

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It would have been easier to read if her story was part one and her advice was part two, but that's a minor complaint. Some of her advice was helpful, like what family and friends should and should not say to us parents of young heart patients. The guidance on what questions to ask would be helpful to those whose children are newly diagnosed. Other pieces of advice didn't sit well with me, like her concept of how to grieve.

ISBN 13: 9781933016801

Also, her faith in an ambiguous God seems untenable at best. Even so, I found this book worthwhile. I recommend reading this book if you have a person with a congenital heart defect in your life. Hopefully you don't, but if you do, read this book. Jan 30, Mel rated it liked it.

Heart Warriors: A Family Faces Congenital Heart Disease - Amanda Adams - Google книги

I am a member of the club. The vast club of mothers who have children with congenital heart defects — the number one birth defect in children. Max, after one surgery, is a normal little boy, with absolutely no restrictions or medications. Will that change, possibly, but I live in a dream that I can often forget his illness. You also may like to try some of these bookshops , which may or may not sell this item. Separate different tags with a comma. To include a comma in your tag, surround the tag with double quotes.

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    Courtney has seen the struggle that heart families face from diagnosis through the long road of treatment and is eager to provide help and reassurance. Zach Mikelson was born in Albuquerque, and has lived in Albuquerque for his entire adult life. Zach and his wife Schlrae welcomed a beautiful baby boy to the world on July 7, Baby Theo was diagnosed with Hypoplastic Left Heart Syndrome and has endured three open heart surgeries in his first four months of life.

    Zach and Schlrae are passionate about congenital heart defects and helping families endure the process. Skip to content.

    Heart Warriors: A Family Faces Congenital Heart Disease Heart Warriors: A Family Faces Congenital Heart Disease
    Heart Warriors: A Family Faces Congenital Heart Disease Heart Warriors: A Family Faces Congenital Heart Disease
    Heart Warriors: A Family Faces Congenital Heart Disease Heart Warriors: A Family Faces Congenital Heart Disease
    Heart Warriors: A Family Faces Congenital Heart Disease Heart Warriors: A Family Faces Congenital Heart Disease
    Heart Warriors: A Family Faces Congenital Heart Disease Heart Warriors: A Family Faces Congenital Heart Disease

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